Friday, September 18, 2009

Update, September 2009

And again, a year has passed since last I penned these Hallo!-halls. Once again, a year filled with everythings & nothings. Nothings for me, the woman. Everything for me, the mom.

In December of 2008, my daughter was diagnosed with Friedreich's Ataxia. FA is a genetic, degenerative neurological disorder. Currently, there is no treatment, there is no cure. There is no guarantee as to progression. There is only a 'wait and see' and daily, a sharper yet more poignant appreciation of things we mostly take for granted. Like walking. And talking. And swallowing. And healthcare. I may post more about FA later, if I come back here any time soon. There's certainly plenty to read if you just do a simple google search. Suffice it to say that the last 9 months have been ... interesting.

Yesterday, she came home & said she wanted to try out for cheerleading. Just try out. She has absolutely no expectations of actually making it -- she just wants to try. Please, mom? Good for her! God, kids are amazing. MY kid is amazing.


Anonymous Anonymous said...

Your blog keeps getting better and better! Your older articles are not as good as newer ones you have a lot more creativity and originality now keep it up!

Friday, January 08, 2010 1:24:00 PM  
Anonymous Anonymous said...

I really like when people are expressing their opinion and thought. So I like the way you are writing

Friday, February 19, 2010 8:26:00 AM  
Anonymous Anonymous said...

Do you have copy writer for so good articles? If so please give me contacts, because this really rocks! :)

Saturday, February 20, 2010 9:06:00 PM  
Blogger Daph said...

yes, your child is amazing :)

Friday, September 17, 2010 10:54:00 PM  

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