Update, September 2009
And again, a year has passed since last I penned these Hallo!-halls. Once again, a year filled with everythings & nothings. Nothings for me, the woman. Everything for me, the mom.
In December of 2008, my daughter was diagnosed with Friedreich's Ataxia. FA is a genetic, degenerative neurological disorder. Currently, there is no treatment, there is no cure. There is no guarantee as to progression. There is only a 'wait and see' and daily, a sharper yet more poignant appreciation of things we mostly take for granted. Like walking. And talking. And swallowing. And healthcare. I may post more about FA later, if I come back here any time soon. There's certainly plenty to read if you just do a simple google search. Suffice it to say that the last 9 months have been ... interesting.
Yesterday, she came home & said she wanted to try out for cheerleading. Just try out. She has absolutely no expectations of actually making it -- she just wants to try. Please, mom? Good for her! God, kids are amazing. MY kid is amazing.
In December of 2008, my daughter was diagnosed with Friedreich's Ataxia. FA is a genetic, degenerative neurological disorder. Currently, there is no treatment, there is no cure. There is no guarantee as to progression. There is only a 'wait and see' and daily, a sharper yet more poignant appreciation of things we mostly take for granted. Like walking. And talking. And swallowing. And healthcare. I may post more about FA later, if I come back here any time soon. There's certainly plenty to read if you just do a simple google search. Suffice it to say that the last 9 months have been ... interesting.
Yesterday, she came home & said she wanted to try out for cheerleading. Just try out. She has absolutely no expectations of actually making it -- she just wants to try. Please, mom? Good for her! God, kids are amazing. MY kid is amazing.
posted by Cinnabar1 at 2:03 PM
4 comments
